Feda and Mu Almaliti
On September 26, 2020 our community lost #FedaAndMu Almaliti in a tragic house fire. Feda made her way out of the home, but Mu, who was profoundly autistic, was still inside. Feda entered the home to save Mu, sadly neither of them survived. Feda died the way she lived, dedicated to her children, willing to make the ultimate sacrifice. Feda was a loving mother, daughter, sister, friend, and a true champion in the autism community.
California Insurance Law
Feda's public autism advocacy began when she challenged her insurer, Kaiser, which had refused to pay for treatments for her son's autism. She won the suit, and then worked to change California law to require health insurance to cover autism treatments. Feda was a member of a group of parents who worked on California SB946, which significantly expanded autism health insurance coverage in California. She then became Insurance Chair of the Bay Area Autism Regional Taskforce. Feda was also Director of Outreach for the Mental Health & Autism Insurance Project (Wikipedia).
The September 26th Project is a collaborative effort among autism and disability organizations to prompt and educate families and practitioners about preparedness for emergencies. It was created in honor of autism advocate Feda and Muhammed (Mu) Almaliti who lost their lives on September 26, 2020 after a fire broke out in their home in Fremont, California. Feda ran upstairs frantically trying to save Mu, but Mu would not comply, and both perished in the thick smoke. The National Council on Severe Autism, Autism Society San Francisco Bay Area, Autism Society California and a dozen other organizations created this project to share basic tools that will assist families and practitioners to be prepared before disaster strikes. Founded in their honor, the #September26Project is an annual emergency preparedness checkup for autism and special needs families. Find us at September26th.org.